Inflammatory bowel diseases are debilitating, painful and still too often taboo diseases, because they permanently and significantly alter the quality of life of patients. At Lille University Hospital, a foundation is taking over it to serve patients.
In Nord-Pas-de-Calais, 30,000 people are affected by these diseases. It is the region most affected by these digestive diseases in France.
For 13 years, the foundation DigestSciencethe first foundation of public utility (decree of 21 July 2008) in France, dedicates its research entirely to digestive diseases and nutrition A foundation to raise funds, develop and finance fundamental research and applied research on diseases of the digestive system, mobilize the general public and support the sick
Founder and President of DigestScience, Pierre Desreumaux, professor of gastroenterology at the University and University Hospital of Lille, observes: “these diseases continue to progress, especially among young people. 250,000 French suffer from chronic inflammatory bowel disease (IBD, which includes Crohn’s disease and ulcerative colitis), more than 10 million suffer from IBS, irritable bowel syndrome, 700,000 from celiac disease.
Founder of the Inserm LIRIC laboratory dedicated to IBD, Professor Pierre Desreumaux is well aware that medical research projects develop over very long periods of time. “VSFor this reason, together with the DigestScience board of directors, we have decided to continue our investment in the 2 flagship projects that we have been funding for 2 years and to invest in a new scientific study:and funding of the HEROIC project. “
A project carried out between Lille University Hospital and Mount Sinai Hospital in New York. A multidisciplinary study on Crohn’s disease to identify its environmental factors, new avenues for prevention and the development of early diagnosis. Objective, to examine in particular the dental exosomes, for the pediatric onset disease.
The foundation is also helping fund a doctoral position for Dr. Marie Titecat, who is working on the interaction of bacteriophages in Crohn’s disease and ulcerative colitis or CU. The challenge is to understand how the bacteriophages could eliminate the bad bacteria responsible for inflammation in the gut.
Finally, as many studies around the world are refocusing on the role of food, the DigestScience Foundation is also participating in a study conducted by Monash University in Australia. This study demonstrated the beneficial role of a low FODMAT’s diet for irritable bowel syndrome (IBS). They are the fermentable sugars that in contact with water, in the small intestine, dissolve and release a gas that causes inflammation, swelling and intestinal disorders.
The successful implementation of this diet is based both on a medical diagnosis, but also on the support of a dietary professional.Pr Pierre Desreumaux, professor of gastroenterology at the University and University Hospital of Lille
A low FODMAT diet is therefore 90% effective on IBS symptoms. But as Professor Pierre Desreumaux reminds us, “LThe successful implementation of this diet is based both on a medical diagnosis, but also on the support of a dietary professional, because the foundation trained a dietician and funded the French translation of the study on the Monash University website“.
Dietitian Oriane Macke-Chaouat, formed by the DigestScience foundation, follows the patients in liaison with the Gastro-Enterologists of the region: “La low FODMAP’s diet is a method that aims to find the best nutritional balance by eliminating symptoms for ¾ of patients.“
A “Le Festin de l’Intestin” cookbook written together with two patients and David Caudron, chef of the restaurant La Meunerie in Téteghem, also helps to accompany the patient, on a daily basis, thanks to menus and recipes adapted to their digestive problems.
To give pleasure to be at the table, to rekindle the desire to eat well together.
David Caudron, Chef of the La Meunerie restaurant
A real challenge as David Caudron demonstrates (3rd in the competition for the best apprentice in France and ½ finalist in the competition for the best worker in France, Kitchen category): “Bringing the pleasure of meeting at the table, rediscovering the desire to eat well together while respecting the particularities of the low-FODMAP method, a challenge that I accepted by putting my 35 years of experience at the service of the DigestScience Foundation, DigestSanté and patients.“
Rediscovering conviviality is in fact the problem of these digestive diseases, due to the stress and anxiety they cause with the symptoms to be managed daily (diarrhea, abdominal pain, blood in the stool, extreme tiredness and sometimes incontinence). A disease whose repercussions are numerous at the level of social, school, professional but also emotional life and that patients are most often silent about.
We will begin by getting to know and understand each other better, identifying the warning signs of our body.Nathalie Guérin, psychologist
In addition to its research work, the DigestScience Foundation also regularly organizes patient support workshops. This is the case on Tuesday, April 26, 2022 at 6:30 pm, with a video seminar on stress management led by psychologist Nathalie Guérin: “notWe will begin first by knowing and understanding each other better, identifying the warning signs of our body. We will then analyze the notions of lifestyle and experiment with stress management tools, such as cardiac coherence, awareness, relaxation, cognitive techniques.“(free upon registration: [email protected]).
A participatory workshop where everyone can share their testimony and experience, remembering that it is not stress that triggers the disease, but the disease that, through its symptoms, causes stress and anxiety in these patients.
To go further in paramedical care, and thanks to donations, the DigestScience Foundation will put DigestSanté, a digital platform, online in the middle of the year. A multidisciplinary space towards which to redirect patients and families after a diagnosis of digestive disease. A place where patients can find the various workshops offered from 2019 (workshops on balanced diet, healthy sport, or even psychological support).
Caregivers will also be able to rely on this platform. As Professor Pierre Desreumaux testifies, “At the hospitalization of my patients and my caregivers, there is a real need to have a place of resources in which to find information and paramedical and socialization actions“.
A foundation more than ever alongside its patients, to help them, after the traumatic announcement of the disease, to overcome obstacles and to fully enjoy life.